Comments for Beyond IBD: transcending chronic illness http://beyondibd.com/blog Information, comfort and inspiration to those living with Crohn's disease and ulcerative colitis. Fri, 14 May 2010 06:28:45 +0000 http://wordpress.org/?v=2.9.2 hourly 1 Comment on How to protect yourself from cold and flu by Jimmy Behimer http://beyondibd.com/blog/general-health/how-to-protect-yourself-from-cold-and-flu/comment-page-1/#comment-292 Jimmy Behimer Fri, 14 May 2010 06:28:45 +0000 http://beyondibd.com/blog/2008/05/how-to-protect-yourself-from-cold-and-flu/#comment-292 Very interesting blog post thanks for writing it I just added your site to my favorites and will be back :) By the way this is a little off subject but I really like your blogs layout. Very interesting blog post thanks for writing it I just added your site to my favorites and will be back :) By the way this is a little off subject but I really like your blogs layout.

]]> Comment on A secret rebellion: why do you really forget to take your meds? by kellyg http://beyondibd.com/blog/treatment/a-secret-rebellion-why-do-you-really-forget-to-take-your-meds/comment-page-1/#comment-284 kellyg Fri, 09 Apr 2010 01:22:24 +0000 http://beyondibd.com/blog/?p=40#comment-284 Many times I 'forget' to take my medications. I'm on seven psychiatric meds and one not related to my illness. I just don't feel like taking them. Too many pills. And knowing that I have to take them for the rest of my life depresses me. If I skip some of my pills, I become hostile and manic. My husband is now making sure I take them, reminding me so I don't 'forget'. Many times I ‘forget’ to take my medications. I’m on seven psychiatric meds and one not related to my illness. I just don’t feel like taking them. Too many pills. And knowing that I have to take them for the rest of my life depresses me.

If I skip some of my pills, I become hostile and manic. My husband is now making sure I take them, reminding me so I don’t ‘forget’.

]]> Comment on How keeping a diary can improve your health by Tamekia Kumar http://beyondibd.com/blog/treatment/how-keeping-a-diary-can-improve-your-health/comment-page-1/#comment-282 Tamekia Kumar Sun, 21 Mar 2010 14:20:10 +0000 http://beyondibd.com/blog/2008/04/how-keeping-a-diary-can-improve-your-health/#comment-282 This has really got me thinking. Thanks for that. I am really looking forward to revisiting this site :) This has really got me thinking. Thanks for that. I am really looking forward to revisiting this site :)

]]> Comment on How keeping a diary can improve your health by Larry G. Cunningham http://beyondibd.com/blog/treatment/how-keeping-a-diary-can-improve-your-health/comment-page-1/#comment-273 Larry G. Cunningham Wed, 09 Dec 2009 15:18:30 +0000 http://beyondibd.com/blog/2008/04/how-keeping-a-diary-can-improve-your-health/#comment-273 I strongly agree about the importance of keeping a diary of your health and your childrens health as well. My family has dealt with and is continuning to deal with some health challenges.Due to these challenges in my family I learned early on about the importance of knowing your family medical history and your personal medical information. Take a look at a product that my family uses that has been a great help called "My Diary For Life". Go to the web site at:www.mydiaryforlife.com I strongly agree about the importance of keeping a diary of your health and your childrens health as well. My family has dealt with and is continuning to deal with some health challenges.Due to these challenges in my family I learned early on about the importance of knowing your family medical history and your personal medical information. Take a look at a product that my family uses that has been a great help called “My Diary For Life”. Go to the web site at:www.mydiaryforlife.com

]]> Comment on The art of idleness by Weaver http://beyondibd.com/blog/outlook/the-art-of-idleness/comment-page-1/#comment-271 Weaver Wed, 26 Aug 2009 03:12:32 +0000 http://beyondibd.com/blog/2008/01/the-art-of-idleness/#comment-271 Just thought I'd check in again, and so glad I did - constructive down time, or creative idleness, would be big on my agenda, if I had one. lol. It is hard for most people to understand IBD and how it impacts upon us, especially because the symptoms can vary so much, and we look well enough to them. I think most people would have difficulty understanding the art of idleness as well. You need to have enough time to slip into this 'waking dream', where you may find just the phrase you were searching for, or work out a solution to a problem. But you definitely need to avoid the 'round and round' thinking in your head - that just seems to produce anxiety. I've found writing down thoughts as they come along helps reduce anxiety because I've written it down and will not forget. Wuzzy, sorry to hear you're not well - I've found an IBD forum that's been terrific to check in to and share concerns with. There are more people onsite with IBD than you ever thought possible! Like you, I felt very isolated with IBD for years, and finding the forum has been a sanity saver, for sure. Anyway, thanks Rebecca for your thoughts, Weaver Just thought I’d check in again, and so glad I did – constructive down time, or creative idleness, would be big on my agenda, if I had one. lol. It is hard for most people to understand IBD and how it impacts upon us, especially because the symptoms can vary so much, and we look well enough to them. I think most people would have difficulty understanding the art of idleness as well. You need to have enough time to slip into this ‘waking dream’, where you may find just the phrase you were searching for, or work out a solution to a problem.

But you definitely need to avoid the ’round and round’ thinking in your head – that just seems to produce anxiety. I’ve found writing down thoughts as they come along helps reduce anxiety because I’ve written it down and will not forget.

Wuzzy, sorry to hear you’re not well – I’ve found an IBD forum that’s been terrific to check in to and share concerns with. There are more people onsite with IBD than you ever thought possible! Like you, I felt very isolated with IBD for years, and finding the forum has been a sanity saver, for sure.

Anyway, thanks Rebecca for your thoughts,
Weaver

]]> Comment on The art of idleness by wuzzy http://beyondibd.com/blog/outlook/the-art-of-idleness/comment-page-1/#comment-270 wuzzy Mon, 20 Jul 2009 05:55:21 +0000 http://beyondibd.com/blog/2008/01/the-art-of-idleness/#comment-270 hey , this is a good site to see up and running . YOU have covered things well and it is good to look through and helpful to know others are living with this illness as well. I am just having an acute attack after 6 yrs in a remission . Though I have had small symptoms , but mostly just let them pass without drugs , so I call it a remission. TRUTH IS I prob just had a low level in my system the whole time and now it has come back with a venegence to knock me around and remind me I can not take things for granted , AGAIN... AGHH. oh well , time off work , drugs , pain relief all that... and hopefully the tests will show I am basically ok and can get back to things soon enough. U do get tired of this , I have gotten tired of it , want it gone , but hey that aint happening. I also know I am having some complications .. as time goes by.. I know I am haivng early joint things , most likley arthritis and pain in my neck and often fevers and just feeling run down... its just part of it... and I also can tell I have some liver and other issues looming from tests I have had ... it is all part of the long term picture that no- one really tells us about. unless u have a good dr and most of us have not had that luxury , mostly it seems like me we go through years and years of misdiagnois and people not caring or understanding , wrong meds and basically a lot of pain and difficulty in having a normal life ... I feind the exhustion and mood is the hardest , just want to disappear and hide for a while till I am a bit better , no one I know ever really gets this is a serious illness , not one person really seems to get that ? is that the experience of others ? I am doing this alone , it is hard . but I have done it for a long time now and nearly died a few times and made it . there is more than Dr's offer , diet and other things that have helped me.. there is hope .. and yet at the same time the one thing I do know is this thing is unpredictable and u never know when and how hard it will hit or what joy u are up for next... and how it can come along just when u think its gone and wack u nice and hard ... yep.. and NO IT IS NOT IN YOUR OR MY HEAD .. good luck hey. hey , this is a good site to see up and running . YOU have covered things well and it is good to look through and helpful to know others are living with this illness as well. I am just having an acute attack after 6 yrs in a remission . Though I have had small symptoms , but mostly just let them pass without drugs , so I call it a remission. TRUTH IS I prob just had a low level in my system the whole time and now it has come back with a venegence to knock me around and remind me I can not take things for granted , AGAIN… AGHH. oh well , time off work , drugs , pain relief all that… and hopefully the tests will show I am basically ok and can get back to things soon enough. U do get tired of this , I have gotten tired of it , want it gone , but hey that aint happening. I also know I am having some complications .. as time goes by.. I know I am haivng early joint things , most likley arthritis and pain in my neck and often fevers and just feeling run down… its just part of it… and I also can tell I have some liver and other issues looming from tests I have had … it is all part of the long term picture that no- one really tells us about. unless u have a good dr and most of us have not had that luxury , mostly it seems like me we go through years and years of misdiagnois and people not caring or understanding , wrong meds and basically a lot of pain and difficulty in having a normal life … I feind the exhustion and mood is the hardest , just want to disappear and hide for a while till I am a bit better , no one I know ever really gets this is a serious illness , not one person really seems to get that ? is that the experience of others ? I am doing this alone , it is hard . but I have done it for a long time now and nearly died a few times and made it . there is more than Dr’s offer , diet and other things that have helped me.. there is hope .. and yet at the same time the one thing I do know is this thing is unpredictable and u never know when and how hard it will hit or what joy u are up for next… and how it can come along just when u think its gone and wack u nice and hard … yep.. and NO IT IS NOT IN YOUR OR MY HEAD .. good luck hey.

]]> Comment on A secret rebellion: why do you really forget to take your meds? by Karilee http://beyondibd.com/blog/treatment/a-secret-rebellion-why-do-you-really-forget-to-take-your-meds/comment-page-1/#comment-269 Karilee Mon, 08 Jun 2009 06:12:34 +0000 http://beyondibd.com/blog/?p=40#comment-269 Thanks for reminding me to take them, however late. I really did forget today. Usually my "system" is to take my pills with my first cup of coffee. No pills, no coffee. Unfortunately I'm out of coffee. I think you're right. I resent that I need to take them, even though I know they help. Thanks for reminding me to take them, however late. I really did forget today. Usually my “system” is to take my pills with my first cup of coffee. No pills, no coffee. Unfortunately I’m out of coffee.

I think you’re right. I resent that I need to take them, even though I know they help.

]]> Comment on Realise your dreams with one small step by Samuel L. http://beyondibd.com/blog/outlook/realise-your-dreams-with-one-small-step/comment-page-1/#comment-268 Samuel L. Wed, 22 Apr 2009 07:13:16 +0000 http://beyondibd.com/blog/2008/05/realise-your-dreams-with-one-small-step/#comment-268 Hey, nice tips. I'll buy a glass of beer to that man from that chat who told me to visit your blog :) Hey, nice tips. I’ll buy a glass of beer to that man from that chat who told me to visit your blog :)

]]> Comment on Are you trying to do too much? by michelle http://beyondibd.com/blog/energy/are-you-trying-to-do-too-much/comment-page-1/#comment-258 michelle Sat, 20 Sep 2008 22:51:35 +0000 http://beyondibd.com/blog/2008/01/are-you-trying-to-do-too-much/#comment-258 i still work 43hours a week as well as trying to fit in doctors appointments infusions etc i have 3 young grandchildren (im 45) and am finding it very difficult to cope day to day financially i cant stop work but would desarly love to at the moment i am spending my days off at day therapy units for treatment and am suffering from a flare up, would like to talk to others for support. i still work 43hours a week as well as trying to fit in doctors appointments infusions etc i have 3 young grandchildren (im 45) and am finding it very difficult to cope day to day financially i cant stop work but would desarly love to at the moment i am spending my days off at day therapy units for treatment and am suffering from a flare up, would like to talk to others for support.

]]> Comment on What are your self-limiting beliefs? by Success Principles As Seen By My Readers | The Writers Manifesto Blog http://beyondibd.com/blog/outlook/what-are-your-self-limiting-beliefs/comment-page-1/#comment-256 Success Principles As Seen By My Readers | The Writers Manifesto Blog Fri, 18 Jul 2008 05:58:56 +0000 http://beyondibd.com/blog/2008/03/what-are-your-self-limiting-beliefs/#comment-256 [...] What Are Your Self Limiting Beliefs? [...] [...] What Are Your Self Limiting Beliefs? [...]

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