Comments on: The art of idleness http://beyondibd.com/blog/outlook/the-art-of-idleness/ Information, comfort and inspiration to those living with Crohn's disease and ulcerative colitis. Sun, 08 May 2011 08:47:48 +0000 hourly 1 http://wordpress.org/?v=3.3.1 By: Weaver http://beyondibd.com/blog/outlook/the-art-of-idleness/comment-page-1/#comment-271 Weaver Wed, 26 Aug 2009 03:12:32 +0000 http://beyondibd.com/blog/2008/01/the-art-of-idleness/#comment-271 Just thought I'd check in again, and so glad I did - constructive down time, or creative idleness, would be big on my agenda, if I had one. lol. It is hard for most people to understand IBD and how it impacts upon us, especially because the symptoms can vary so much, and we look well enough to them. I think most people would have difficulty understanding the art of idleness as well. You need to have enough time to slip into this 'waking dream', where you may find just the phrase you were searching for, or work out a solution to a problem. But you definitely need to avoid the 'round and round' thinking in your head - that just seems to produce anxiety. I've found writing down thoughts as they come along helps reduce anxiety because I've written it down and will not forget. Wuzzy, sorry to hear you're not well - I've found an IBD forum that's been terrific to check in to and share concerns with. There are more people onsite with IBD than you ever thought possible! Like you, I felt very isolated with IBD for years, and finding the forum has been a sanity saver, for sure. Anyway, thanks Rebecca for your thoughts, Weaver Just thought I’d check in again, and so glad I did – constructive down time, or creative idleness, would be big on my agenda, if I had one. lol. It is hard for most people to understand IBD and how it impacts upon us, especially because the symptoms can vary so much, and we look well enough to them. I think most people would have difficulty understanding the art of idleness as well. You need to have enough time to slip into this ‘waking dream’, where you may find just the phrase you were searching for, or work out a solution to a problem.

But you definitely need to avoid the ’round and round’ thinking in your head – that just seems to produce anxiety. I’ve found writing down thoughts as they come along helps reduce anxiety because I’ve written it down and will not forget.

Wuzzy, sorry to hear you’re not well – I’ve found an IBD forum that’s been terrific to check in to and share concerns with. There are more people onsite with IBD than you ever thought possible! Like you, I felt very isolated with IBD for years, and finding the forum has been a sanity saver, for sure.

Anyway, thanks Rebecca for your thoughts,
Weaver

]]> By: wuzzy http://beyondibd.com/blog/outlook/the-art-of-idleness/comment-page-1/#comment-270 wuzzy Mon, 20 Jul 2009 05:55:21 +0000 http://beyondibd.com/blog/2008/01/the-art-of-idleness/#comment-270 hey , this is a good site to see up and running . YOU have covered things well and it is good to look through and helpful to know others are living with this illness as well. I am just having an acute attack after 6 yrs in a remission . Though I have had small symptoms , but mostly just let them pass without drugs , so I call it a remission. TRUTH IS I prob just had a low level in my system the whole time and now it has come back with a venegence to knock me around and remind me I can not take things for granted , AGAIN... AGHH. oh well , time off work , drugs , pain relief all that... and hopefully the tests will show I am basically ok and can get back to things soon enough. U do get tired of this , I have gotten tired of it , want it gone , but hey that aint happening. I also know I am having some complications .. as time goes by.. I know I am haivng early joint things , most likley arthritis and pain in my neck and often fevers and just feeling run down... its just part of it... and I also can tell I have some liver and other issues looming from tests I have had ... it is all part of the long term picture that no- one really tells us about. unless u have a good dr and most of us have not had that luxury , mostly it seems like me we go through years and years of misdiagnois and people not caring or understanding , wrong meds and basically a lot of pain and difficulty in having a normal life ... I feind the exhustion and mood is the hardest , just want to disappear and hide for a while till I am a bit better , no one I know ever really gets this is a serious illness , not one person really seems to get that ? is that the experience of others ? I am doing this alone , it is hard . but I have done it for a long time now and nearly died a few times and made it . there is more than Dr's offer , diet and other things that have helped me.. there is hope .. and yet at the same time the one thing I do know is this thing is unpredictable and u never know when and how hard it will hit or what joy u are up for next... and how it can come along just when u think its gone and wack u nice and hard ... yep.. and NO IT IS NOT IN YOUR OR MY HEAD .. good luck hey. hey , this is a good site to see up and running . YOU have covered things well and it is good to look through and helpful to know others are living with this illness as well. I am just having an acute attack after 6 yrs in a remission . Though I have had small symptoms , but mostly just let them pass without drugs , so I call it a remission. TRUTH IS I prob just had a low level in my system the whole time and now it has come back with a venegence to knock me around and remind me I can not take things for granted , AGAIN… AGHH. oh well , time off work , drugs , pain relief all that… and hopefully the tests will show I am basically ok and can get back to things soon enough. U do get tired of this , I have gotten tired of it , want it gone , but hey that aint happening. I also know I am having some complications .. as time goes by.. I know I am haivng early joint things , most likley arthritis and pain in my neck and often fevers and just feeling run down… its just part of it… and I also can tell I have some liver and other issues looming from tests I have had … it is all part of the long term picture that no- one really tells us about. unless u have a good dr and most of us have not had that luxury , mostly it seems like me we go through years and years of misdiagnois and people not caring or understanding , wrong meds and basically a lot of pain and difficulty in having a normal life … I feind the exhustion and mood is the hardest , just want to disappear and hide for a while till I am a bit better , no one I know ever really gets this is a serious illness , not one person really seems to get that ? is that the experience of others ? I am doing this alone , it is hard . but I have done it for a long time now and nearly died a few times and made it . there is more than Dr’s offer , diet and other things that have helped me.. there is hope .. and yet at the same time the one thing I do know is this thing is unpredictable and u never know when and how hard it will hit or what joy u are up for next… and how it can come along just when u think its gone and wack u nice and hard … yep.. and NO IT IS NOT IN YOUR OR MY HEAD .. good luck hey.

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